Ups!
Seizures seem to be under control.
Protocols seem to be going well.
Meds are tweaked.
Downs.
random headaches,
stomach aches,
leg pain, all over not feeling good.
He has only had one unexplained fever since we have been here but still has had it.
It is just so frustrating. And I am tired just so tired. Tired of making decisions, tired of those decisions being questioned by people who do not have the whole picture, tired of strains, tired of insurance companies, tired of doctors who disagree, tired of doctors who want to be right more than they want to help, tired of well meaning people that make me feel awful. I am just tired. And apparently whiney too!...oh well I can get it all out here and be ready to put on the happy face and start the day again tomorrow.
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2 comments:
You don't have to put on the smiley face for the people who really care about you...
You know, I think that is alright to be tired of all of those things. You & your family work day in and day out to provide the best you can for your babies and it is exhausting under normal circumstances, which unfortunately you do not have. The best advice I can give you is happy, upbeat music + a glass of wine = a refreshed feeling! No kidding, do not think I am being silly, but sometime you just need to lift your spirits and this is a good formula. Take for instances the song “Blessed” Martina McBride, oldie but a goodie “Walking in the Sunshine” Roger Miller, “Sweet Pea” Amos Lee, I could go on and on, but you get the picture. Cheap and effective. As a matter of fact, I am going to post a link that you can go to and create a little upbeat playlist for free and you can listen to it when you want! It is like the one that I recently added to my blog and it is very easy and quick! I so hope this helps Kel and when you return please let me know and I will treat you to some girl time! http://www.playlist.com/ As always, you’re in my thoughts and prayers and know you are a wonderful wonderful Mother and your a doing such a great job. I have always respected you as a mother. You are an amazing person!
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