Tuesday, November 24, 2009

Doing Good

Braden is doing very well.

He has been super emotional the last few days so not sure what is up with that he may not be getting enough rest. He requires a lot of sleep with his meds, etc and I have been waking him up because of this or that so hopefully that is all that is.

All in all just trying to keep him well. Staying home a lot and venturing out only with my travel lysol and hand sanitizer!

We go back to Texas doctors middle of January...12 weeks between visits that is so great for us that is the longest stretch in years!

Tuesday, November 3, 2009

Update

First round of doctors is done.
The mass is still stable and the biopsy is negative so they will continue to leave it alone and measure every 3 months. They stated they may want to do more radiation in the Spring to see if we can get it to shrink some more but right now it is not growing so we are good with that and so very thankful benign. If it does grow of course they will have to remove it because of where it is but we aren't going to worry about that right now. We will go into more details on Thursday.
His copper levels for his Wilson's disease were good and his liver function is actually improved.
We get his EEG results back Wednesday then will have a round table with his hepatologist, nuero, nuero surgeon and nutrionalist on Thursday to discuss more in depth the plan.
All in all going good.