Thursday, May 21, 2009

typical schedule

Brae hasn't got sick again so for that we are very thankful. We believe he chewed a pill that was suppose to be a swallow pill and it just entered his system to quickly.
To give everyone a better understanding here is a typical schedule for Brae.
AM - takes 2 liquid medicines that are so horrible tasting
takes 14 swallow pills
Noon - takes 1 liquid medicine
takes 10 swallow pills
PM - takes 1 liquid medicine
takes 16 swallow pills
Before Bed - 2 pills
Each day he has to do certain excercises that are to help the body release things, such as a mini trampoline, etc. He has 30 minutes of those a day, he has to drink 80 ounces of water, he has to take certain baths that is another way to draw out the copper he hates hates these he does them every day we even set up the portable dvd player in the bathroom for him.
Anyway that is just a sample some days he has a few more things.
The diet is going well. We had to get a vitamix mixer to make fruit smoothies etc so that he would get more nutrients than using a blender, etc. So playing with that and dehydrating lots of fruit for him to have as well. The trick with that is measuring the glycemic index.
He broke my heart yesterday telling his sister how lucky she was that she wasn't sick her whole life like he is. She felt guilty she cleaned his room for him...knowing Brae that may have been the plan :)
His attitude has faltered here and there and who could blame him but for the most part he is just handling it all wonderfully.

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