Today was lots of talking with the docs planning out what will have to be done the next 6 weeks. It can get very overwhelming. Brae is holding together so well. He had a seizure yesterday afternoon and I know it was stress. Today he got dizzy but I think this time was heat. We are learning how so many things are working against each other in his body. The real trick is to make all his treatments work without counteracting with another treatment for a separate issue.
I am blessed to have doctors that work together. We were having a little tiff between a couple of docs and another one summed it up quite well. He said everyone wants to be right especially with Brae he said Brae is a textbook article, so of course all want to be the one that figured it all out. However the reason he is my favorite his statement was "I will gladly admit I am wrong if something they figure out works better for him than what I am doing". It made sense they way he put it all to me. However I think they are all soothed and know that we are all working together.
Tomorrow will be a much easier day for him and he is looking forward to that. We are hoping to head home sometime Sunday. We would like to be home before then but that isn't going to work so Sunday will be great. We will be coming back the last week in June basically like clock work every six weeks. Everyone teases about how organized I am but you haven't seen anything yet to make all these treatments and supplements work eek I told Braden I am going to set alarms on my cell phone and we are going to make a calendar him and I were brainstorming different ideas to help us on our way between appointments.
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