I haven't updated in awhile and that is mostly because things have been quiet! We like quiet!
Braden has been battling a cold for about a week but his seizures have stayed under control even with that. That is so wonderful. He has added 3 more medications to his daily pills and that has been hard for him we caught him throwing his pills away one day. It is hard to take that many pills when you are 10 or at any age for that matter but to a 10 year old taking 16 pills in the morning, 8 at noon, and 12 in the evening is hard. Anyway didn't mean to get on that subject but that is an area we are praying for him to have more acceptance. Don't get me wrong he still has a wonderful attitude that gets him through so much but he simply does not want to take all those pills...who could blame him.
We were abudantly blessed annonymously this week. Only God knew some of the financial issues we had coming up with another trip to Texas in the future and some lab and medication issues between now and then. I had not even shared all my concerns with Matt. It was so wonderful it is hard because we aren't sure who gave to us and I want to hug them so badly and tell them how much it meant but I am sure they know.
Braden is continuing to gain weight which is VERY good he hit 70 pounds! He has been cleared to play soccer again this Fall and they are allowing him to play in the younger group rather than moving up with his actual numeral age group. That was a blessing too!
Right now seizures are under control, mass is not growing, copper level is lowering, metal levels are lowering. We are doing strict diet and detox things as well as his prescription medications and supplement medicines. The diet is difficult at times but for the most part he is doing well.
Friday, August 21, 2009
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